Rett Syndrome
We were thrilled to coordinate Dawn and Wes' wedding back in 2006 and it's been great to watch their marriage grow. They have two beautiful daughters, ages 2 and 4 months. They are passionate about helping to find a cure for Rett Syndrome - here's an excerpt from Dawn's blog:
As most of you know, our 2 year old daughter, Reagan, was diagnosed with Rett Syndrome in January. Rett Syndrome is a debilitating neurological disorder diagnosed almost exclusively in females, affecting approximately 1 in 10,000 live births around the world. It has taken away many of our hopes and dreams for Reagan. She cannot speak and has lost the purposeful use of her arms and hands. We are fortunate that she is one of the few girls affected that can walk, however it is possible that she will eventually lose this ability as well.
Dawn and Wes are chairing a Strollathon in Austin on September 18th to help raise refunds for research. For more details please see Dawn's blog. Let's help this beautiful little girl!
As most of you know, our 2 year old daughter, Reagan, was diagnosed with Rett Syndrome in January. Rett Syndrome is a debilitating neurological disorder diagnosed almost exclusively in females, affecting approximately 1 in 10,000 live births around the world. It has taken away many of our hopes and dreams for Reagan. She cannot speak and has lost the purposeful use of her arms and hands. We are fortunate that she is one of the few girls affected that can walk, however it is possible that she will eventually lose this ability as well.
Dawn and Wes are chairing a Strollathon in Austin on September 18th to help raise refunds for research. For more details please see Dawn's blog. Let's help this beautiful little girl!